Muscular Dystrophy Association 

MDA MOVR Data Request Form

Your Information











Type of Data Being Requested





Information About Your Request












*We will make every effort to meet your timeline. However, please keep in mind that more complex requests may take longer to process. Registry Data requests that fall under the Authorized Uses, as outlined in the Data Governance Policy, will have an average process time of 10 business days. Other requests outside of the Authorized and Non-Authorized Uses will be reviewed further by the MOVR Data Use and Publications Subcommittee and may take up to 30-40 business days, depending on the complexity of request. Upon approval of request, Requestor must agree to terms outlined in the Data Access, Use, and Distribution Agreement before given access to the Registry Data. 


Study Mailbox